Supporting the Autism community, today and everyday

Bethany works with folks and families effected by autism every day. Here is what you need to know about Autism, and how you can support the Autism community.

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Bethany Peralta spends her days serving folks and families who are affected by autism, ADHD, and other neurodevelopmental disorders. She is also a wife, a mama, and a Mexican food enthusiast.

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Bethany with her hubby and little one

 

Who you are: Bethany Peralta, Intake Coordinator at The Center for Autism & Neurodevelopmental Disorders

What you do: The last 7 months I have had the privilege and responsibility of guiding families through the process of seeking a diagnostic evaluation, enrolling in therapy services, and providing help and hope to individuals and families affected by autism, ADHD, and other neurodevelopmental disorders, through resources, research opportunities, and parent education and trainings. I have also been very involved in community outreach through our partnerships and affiliate programs in the community.

Where you do it: The Center for Autism & Neurodevelopmental Disorders, in Santa Ana, CA.

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Bethany (far left) at The Center

 

Let’s start at the beginning. What drew you to work with folks on the spectrum? What keeps you coming back to work everyday?

I returned to school for a second time in my mid-twenties after working in early childhood education for over 10 years. My second time in college I sought training to become a Certified Medical Assistant. I knew once I finished my program that I wanted to stay working in pediatrics to some capacity, but my work opportunities lead me initially into the world of physical therapy. After 5 years working as an Office Manager, I left the small PT company and applied to positions through UCI (University California Irvine). An old friend of mine was working at UCI in the School of Medicine and pointed me in the direction of For OC Kids. Shortly before I came on board with The Center, the For OC Kids organization had received a catalytic grant from the Thompson Family Foundation that propelled our small specialty clinic into the leader in Autism assessments, diagnostics, care coordination, and family support that we are today. When I was first hired at The Center, I was a receptionist/scheduler. Within my first year was promoted to become our Therapy Service Coordinator guiding families through insurance coverage benefits and limitations and helping them get enrolled or connected with therapy services such as Occupational Therapy, Speech Therapy, and ABA (behavior therapy). In August of last year the need for a full time Intake Coordinator was brought to my attention and I began working with families contacting our office with case management support. I had not intended to take over New Patient Intake, but knowing that I can provide information and support to parents who are seeking help for their child makes my job so fulfilling and meaningful. It can be a very stressful and emotional role, but knowing that the information I have can make a direct impact on their family life makes it all worth the struggle.

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When we say “autism” what are we really talking about– what IS autism?

Autism Spectrum Disorder (ASD) is a lifelong impairment most associated with communication and social behavior. ASD deficits can be wide ranging, including nonverbal and self aggressive to high functioning with social interaction limitations, and everyone in between. Many individuals affected by Autism may also have sleep issues or gastrointestinal problems. Research is ongoing to better understand these connections and how they impact individuals.  In May of 2013, the DSM-5 was released. It is the current standard reference tool healthcare providers use to diagnosis mental and behavioral health disorders. Previously under the DSM-IV, a patient could have been given a diagnosis of Autism, Asperger’s, Pervasive Development Disorder-not otherwise specified. Now under the DSM-5, it is an all encompassing umbrella that addresses the wide deficits and  impairments of Autism Spectrum Disorder.

What are some misconceptions about autism that still linger today?

The biggest misconception I hear from people is that ASD means their child, if diagnosed, will become nonverbal, stop making eye contact, will start rocking or pacing, etc. And although that may be true for some individuals, it is not true for everyone. I like to think of a diagnosis of Autism as a tool to help guide and direct patients into the therapies that will really help them excel and overcome the challenges that they are facing.

What are some things people can do for Autism Awareness month?

Autism Speaks has several great ideas for supporting and participating in Autism Awareness month:

  • The 8th annual World Autism Awareness Day is Saturday, April 2, 2016. Wear your favorite blue clothing to show support and use it as a fundraising opportunity. For example: organizations can allow employees to wear jeans or other casual wear to work and to participate donate any set dollar amount (say $5-10 per person to participate). Donate those funds to local Autism related recreation or wellness programs or to Autism Speaks directly through their #LIUB campaign (raising funds to continue research in the field of Autism.)
  • Light it up blue! Is the annual event to light up your home or office building in support of Autism. Go to www.autismspeaks.org/liub  to register your home or business. (You can also pledge to wear blue on April 2nd from this page.)
  • Finally, people can register to create/join a team or volunteer to help assist at their local Autism Speaks Walk. These walks are vital for gathering funds to continue much needed research and provide awareness for this complex disorder.

AS Walk

Outside of Autism Speaks support, I encourage families to look into their local Universities and other community programs that offer many events throughout the entire month. For example:

  • our Center is having an Ask The Experts” panel where several clinicians will be available for questions and answers with our Education and Training Coordinator, Anna Laakman, moderating the evening.
  • Chapman University is hosting their annual Autism Social. This event is geared towards teens 16 years and up (through adult). Its a coordinated, cost-free event with music, dancing, art, games, food, and caregiver resources. There is also a designated quiet area, which is so necessary for large scale events like this. They really have thought of everything!!
  • OC Autism and Fullerton Cares Autism Coalition also have their annual events which include no-cost or low cost admission with family friendly entertainment and activities.

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Time for some fun questions: Pepsi or Coke?

I think I would pick Pepsi. But really, as long as my cup has enough ice, I am happy to drink anything!

What is the best song to sing to in the shower or when you are alone in the car?

My current guilty pleasure includes Justin Beiber’s Love Yourself or anything from Fleetwood Mac.

What was the best piece of advice you have received?

I worked with an amazing Pediatric Psychologist when I first started in this field. She always quoted Maya Angelou when we hit a rough spot in our NCS research project: “ I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” That still is ever so true in the work that I do. Even if I don’t have the answer, I can take the time to listen and be patient and polite to a parent. And that really does make all the difference.

What was the worst?

Before I took over my current position, there was not an established resource/referral list for community clinicians. The worst advice I had prior to generating a frequently used and sought after list was giving parents pretty hopeless resources. I’m very proud of how far we have come and the service that I can provide to families.

What is your definition of beauty? Or, when/where do you feel most beautiful?

My definition of beauty is to be yourself. Be confident in what you know and be proud of who you are. I feel the most beautiful when I stand up for myself and I accept opportunity for change. Looks can be fleeting, so don’t limit your self worth to that alone. Have a kind heart and a sharp mind. They’ll last longer anyway.

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What do you want people KNOW after reading about what you do?

Autism is not a death sentence. Early assessment and interventions do help to produce stronger personal advancements. But for those with teenagers or young adults, don’t give up. Know that a variety of clinicians, such as Neurologist, Psychologist, Psychiatrist, or a Developmental Behavioral Pediatrician, can all help. If your pediatrician or family doctor is comfortable making the diagnosis, they are also qualified to do so. And they can certainly make the necessary referrals for treatment services. If you have any specific questions or want to learn more about Autism, you can visit our website at: http://www.thecenter4autism.org/

Look into programs like Regional Center for low cost or no-cost screenings or contact your local school district for an education assessment as a place to start. There are a lot of resources available to families, and sometimes it’s as simple as starting with your pediatrician.

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